Hard Day

Caroline's first day at home was not an easy one. In fact, we were almost re-admitted to Children's this afternoon. No need to worry, her heart and lungs are doing fine. She just has a VERY sensitive gut. Slow digestion and vomiting have been with us throughout Caroline's life and have certainly made our journey especially difficult. So far post-surgery this is still the case. Caroline woke up several times in the night crying and vomiting. Tylenol took the edge off, but didn't solve the problem. Oxycodone made the problem worse. We were stuck with a miserable kid, no medicines that were able to help much, and two worried parents wondering if we had a serious problem brewing. Fortunately, the heart center was extremely responsive to our concerns and we were seen today by Dr. Permut to make sure all was ok. Caroline definitely did not appreciate the victory lap through the heart center, as she has developed a very healthy fear of healthcare providors, vital signs, and doctor's offices. She started fussing as soon as we pulled into the Children's parking lot! However, we were very relieved to hear that they think Caroline's gut just needs a rest. We are backing off her feeds completely and starting with a slow drip of pedialyte. We're hopeful that with some time off of formula, her gut will get the much needed rest it needs, she'll start to tolerate her feeds, and we'll get our playful little girl back.